Avery Canahuati has never gone swimming or worn a Halloween costume, but she has received her first kiss. She is just 5 months old, and these three items have already been placed on her "bucket list," a heartbreaking catalogue of things to do before her life is over. Her time to complete that list is limited.
On April 6, according to the infant's personal website, her parents, Mike and Laura, of Bellaire, Tex., found out that she has spinal muscular atrophy or SMA, an incurable genetic disease, and she won't live past age 2. Creating the bucket list, and writing about it on a blog, is the couple's way of coping with such a devastating diagnosis,
Each blog post, written from the baby girl's perspective, is surprisingly playful and packed with pictures and updates, but they all have a singular focus -- to spread awareness of SMA and "make sure other children and their families don't have to go through what [Avery and her family are] going through." This goal is reflected in the following wish on her bucket list of over 100 items: "Go viral on the internet -- I know I'm not singing a song, doing anything funny, saying something politically incorrect, or anything like that, but it would be nice if my story went viral so that SMA has a face."
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